Pulmonology Resource Links

Here is a list of online resources and support about pulmonolgy-related topics.

  • American Academy of Allergy, Asthma and Immunology
    611 E. Wells St. Milwaukee, WI 53202 Tel: 414.272.6071 Fax: 414.272.6070
    A driving force in the study and treatment of allergic disease through education, research and cooperation since 1943. They offer pollen and spore counts, allergy reports, activities for children and more.
  • Asthma and Allergy Foundation of America (AAFA)
    1233 20th Street, NW, Suite 402 Washington, DC 20036 1.800.7ASTHMA (727.8462) Fax 202.466.8940 e-mail:info@aafa.org
    The Asthma and Allergy Foundation of America (AAFA) is the premier patient organization dedicated to improving the quality of life for people with asthma and allergies through education, advocacy and research. They offer asthma and allergy information, a kids and teens section, and a list of support groups. Information is available in both English and Spanish.
  • COPD-Support, Inc.
    e-mail: management@copd-support.com
    COPD-Support, Inc. is a non-profit providing support, education, and sharing information and ideas for individuals who have Chronic Obstructive Pulmonary Disease (COPD), caregivers of individuals who have COPD, and others who have an interest in the subject. They offer a mailing list, a newsletter, forums, buddy lists and more
  • Second Wind Lung Transplant Association, Inc.
    300 South Duncan Avenue,Suite 227 Clearwater, Florida 33755-6457 Tel: 888.222-2690 or 727.442.0892 E-mail: secondwind@netzero.net
    Mission: To improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.
  • Mayo Clinic Transplant Center
    The lung transplant program is directed by surgical specialists in cardiothoracic transplantation and staffed by specialists in adult and pediatric pulmonology, infectious diseases, nephrology, cardiology and pathology.
  • Barnes-Jewish Hospital at Washington University Medical Center
    One Barnes-Jewish Hospital Plaza St. Louis, Missouri, 63110 Tel: 314.747.3000
  • Barnes-Jewish Hospital at Washington University Medical Center
    Lung Transplant Program
  • Barnes-Jewish Hospital at Washington University Medical Center
    Lung Volume Reduction
  • The Cystic Fibrosis Foundation
    6931 Arlington Road Bethesda, Maryland 20814 Tel: 800.FIGHT.CF (344-4823) or 301.951.4422 Fax: 301.951.6378 e-mail: info@cff.org
    The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
  • Cystic Fibrosis Research Inc.
    560 San Antonio Road, Suite 103 Palo Alto, CA 94306-4349 Tel: 650.856.0546 Fax: 650.856.0554 e-mail: cfri@cfri.org
    The (CFRI) Knowledge Base is a collection of files about cystic fibrosis taken from our vast collection of CFRI newsletter articles, conference transcripts, and other sources. All this information is available to you in an easy-to-search format. Have a look.
  • Emphysema Foundation For Our Right To Survive (EFFORTS)
    Email: efforts-request@home.ease.lsoft.com
    EFFORTS is the most energetic and comprehensive Emphysema organization on the web. EFFORTS is a non-profit organization, formed, funded and operated by patients with the disease, working to promote deeper research for more effective treatment and, hopefully, a cure for Emphysema and related lung disease. It also provides a very vital support mailing list and educational resource for it's members, without fees or monetary donations. Please join them. Be an activist in managing your own disease and join EFFORTS to promote that vital medical research. If we don't do this, who will?
  • The National Emphysema Foundation (NEF)
    15 Stevens Street Norwalk, CT 06856 e-mail: gary@emphysemafoundation.org Fax: 203.854.9191
    Since 1971, when it was founded, the foundation has successfully carried out its mission; to improve the quality of those who have contracted emphysema, asthma and related diseases, through education, research and direct patient care.
  • Your Cancer Risk at Harvard Center for Cancer Prevention
  • CancerNet - a service of the National Cancer Institute
    Tel: 800.4CANCER
    The National Cancer Institute leads the Nation's fight against cancer by supporting and conducting ground-breaking research in cancer biology, causation, prevention, detection, treatment, and survivorship.
  • The Alliance for Lung Cancer (ALCASE)
    1601 Lincoln Avenue P.O. Box 849 Vancouver, WA 98666 Tel: 800.298.2436 or 360.696.2436 Fax: 360.735.1305 email: info@alcase.org
    The Alliance for Lung Cancer Advocacy, Support, and Education (ALCASE) is the only nonprofit organization dedicated solely to helping those living with lung cancer improve the quality of their lives through advocacy, support, and education.
  • The University of Texas M. D. Anderson Cancer Center
    1515 Holcombe Blvd Houston, TX 77030 800.392.1611 or 713.792.6161
    M. D. Anderson Cancer Center has grown into a sprawling campus with a worldwide reputation for excellence in cancer patient care, research, education and prevention.
  • Academy of Dental Sleep Medicine
    The Academy of Dental Sleep Medicine (ADSM) was founded in 1991 by eight dentists interested in the problems associated with snoring and other sleep-breathing disorders. Since then, the organization has grown to over 500 members world-wide who collaborate with dental and medical colleagues to learn about oral appliances and the role that dentists play in the diagnosis and treatment of sleep-related breathing disorders.
  • American Sleep Apnea Association
    1424 K Street NW Suite 302 Washington, DC 20005 Tel: 202.293.3650 Fax: 202.293.3656 e-mail: asaa@sleepapnea.org
    American Sleep Apnea Association is dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness, the ASAA A.W.A.K.E. Network of voluntary mutual support groups, research, and continuous improvement of care.
  • American Academy of Sleep Medicine
    6301 Bandel Road NW Suite 101 Rochester, MN 55901 Tel: 507.287.6006 Fax: 507.287.6008 e-mail: aasm@aasmnet.
    The American Academy of Sleep Medicine has been organized to promote and advance the mutual interests of its members engaged in sleep disorders medicine.
  • Sleepnet.com - Public Sleep Forums
    Everything you wanted to know about sleep but were too tired to ask ™ (since 1995)
    P.O. BOX 1593 Piscataway, NJ 08855-1593 Tel: 732.699.0733 Fax: 732.699.0882 e-mail: asaa@sleepapnea.org
    NSRC was started so that others with Sarcoidosis would know that they are not alone. The Resource Center offers full support, including referrals to doctors in your area and the locations of support groups.
  • Tuberculosis
    Center for Disease Control and Prevention - Division of Tuberculosis Elimination
    This site offers detailed information about transmission, the disease, the infection, and more. They also offer a comprehensive "Frequently Asked Questions" section.
  • Pulmonary Rehabilitation
    Patients with limiting shortness of breath who participate in Pulmonary Rehabilitation experience improvement in the time to fatique (endurance) and also note a shortening of recovery time. Almost all patients say pulmonary rehab has stabalized their lives and enhanced their physical performance in nearly all aspects.
  • American Lung Association (ALA)
    1740 Broadway NY, NY 10019 Tel: 212.315.8700 E-mail: info@lungusa.org
    The mission of the American Lung Association is to prevent lung disease and promote lung health. They provide information, resources, programs, events, research and tobacco control updates, and links to support groups.
  • American Thoracic Society
    1740 Broadway New York, NY 10019 Tel: 212.315.8700
    The American Thoracic Society, founded in 1905, is an independently incorporated, international, educational and scientific society which focuses on respiratory and critical care medicine.
  • Family Caregiver Alliance
    690 Market Street Suite 600 San Francisco, CA 94104 Tel: 415.434.3388 Fax: 415.434.3508 E-mail: info@caregiver.org
    The Family Caregiver Alliance is the premier support organization for caregivers. Their site has wonderful features for families, caregivers, professionals, policy makers, and the media.
  • National Jewish Medical and Research Center
    1400 Jackson Street Denver, CO 80206 800.222.LUNG (5864) or 303.388.4461
    National Jewish Medical and Research Center is known worldwide for treatment of patients with respiratory, immune and allergic disorders, and for groundbreaking medical research. Founded in 1899 as a nonsectarian, nonprofit hospital for tuberculosis (TB) patients, National Jewish enters the 21st century as the only facility in the world dedicated exclusively to these disorders.
  • UpToDate Patient Resource Center
    800.998.6374 or 781.237.4788
    UpToDate is a practical clinical reference designed to provide instant access to the information you need. It is comprised of thousands of original topic reviews written by a recognized faculty of experts who each address a specific clinical issue and provide detailed recommendations.